About

Hello world! This is my first blog, and the reason I’m writing it is because I recently contracted a mosquito-borne virus called the Chikungunya virus while I was on vacation in the Caribbean. I live in New England, and the mosquito that typically transmits this disease (the Aedes mosquito) is not native to this part of the US (but is in the Caribbean). Hence my reason for writing this blog: I am pretty isolated up in New England with this miserable virus. I have never met anyone who has also had this virus, and even the best Infectious Disease doctors in the state have limited training and experience on this particular illness; although I am under the care of a couple of docs (both internal medicine and infectious disease), I feel that I have nobody to relate to or “compare notes” with, especially on a personal level.

 

I’m writing this blog to share my story of how Chikungunya presented itself in my case, and discuss how I reacted to it on a personal level. I remember on the 4th day of Chikungunya symptoms, lying in the emergency room staring at the ceiling thinking, “this is pretty scary. Just breathe.” I like to think I’m a tough girl, but the symptoms are so bizarre with this virus that I honestly had no idea what was going to happen. The first week is like the 7 plagues: each day I woke up with a new bizarre, and in some cases terrifying, symptom. And I was in pain. While I was staring at the ceiling contemplating my Chikungunya demise, my husband next to me was furiously Googling the keywords “Chikungunya rash” wondering if the scary rash I had would result in some crazy anaphylactic allergic reaction/ultimate death (spoiler: no, it didn’t). Sure, the CDC, the WHO, Webmd, Wikipedia etc. all have very detailed “spec sheets” of typical Chikungunya symptoms with respect to a wide profile of patients. There are tons of statistical analyses out there and a plethora of explanations of the mechanism of transmission. Although I had all the statistics, at that point, lying in the hospital bed, I was really looking for someone out there in cyberworld I could relate to on a personal level. I was desperately seeking a Chikungunya blog to no avail, and hence I’m really hoping to help anyone out there who may be seeking the same thing, or who’s going through the first phases of the disease and wants to know about someone else’s experience. I’m also certainly speaking to those who may not have had the virus, but who are curious as to what Chikungunya is and its effects on day to day life.

 

Some both relevant and non-relevant background on me/ my medical history: Overall, I’m a very healthy 27 year old female. Before Chikungunya, I exercised 5-6 times per week (lifting weights, yoga, spin, running etc.). I accomplished my goal of deadlifting my body weight earlier this year, and I continue to power lift toward new goals. I have a pretty high stress job as an engineer, and I commute via public transportation and walking (I’m on my feet a lot). I’m married, and we just bit the bullet and bought a house in the ‘burbs about 6 months before I got sick. I have a resting pulse in the low 50’s, and my blood pressure/cholesterol/yearly blood panel is excellent. I’m a regular flosser, so much that my dentist gave me a high five last time I was in for a cleaning. (I’ll explain why this is important later.) I take a multivitamin every day, and I eat a pretty balanced diet (except for the fact that I enjoy the occasional Sunday afternoon mojito or Pinkberry dessert.) If there was a gold medal for sleeping, I’d win it. I fall asleep instantly and could sleep for a dozen hours if I wanted. Never wake up in the middle of the night, don’t wake up with night terrors or nightmares typically, and feel well rested most days.

 

Major surgeries? Had my appendix out at the age of 10, and standard wisdom teeth removal in high school. Significant illnesses? I had pneumonia when I was 22, and I used to get frequent colds and sinus infections before I got into exercise about 4 years ago. Since then (in the past 4 years), I have had 3 colds. I’m thus a strong believer that fitness is the secret. No history of joint pain, no history of mental illness or depression (I’ll explain later why this is also important). Overall a happy healthy, and for the most, part bright-eyed and bushy-tailed 27 year old.

 

As I write this, I’m in the 5th week of Chikungunya (spoiler: i’m still feeling it.) Each day of the acute phase I actually wrote down my symptoms since I knew up front that, in this area of the world, Chikungunya isn’t hugely well defined or researched. I was misdiagnosed during the early stages of the virus by one ID doc as having dengue fever (prior to blood results, which confirmed Chikungunya positive and dengue negative), and another ID doc I went to actually pulled up the CDC website to read about Chikungunya symptoms as I was sitting in her office asking her questions. (Probably could have done that myself, but that’s a story for another day.) I wrote everything down with the intention of writing this blog, so voila — intention manifested. In this blog, I’m going to rewind back to Day 1 (and prior — I’ll discuss where I traveled) and detail exactly how I felt each day during the acute phase, and then conclude with how I’m doing now in what I believe to be the “subacute” phase, 5 weeks later. I hope this blog will end there (i.e. that I’ll be feeling better ASAP), but who knows how long this thing will last. The doctors certainty don’t!

 

Before continuing on, I must make a couple disclaimers: Disclaimer #1) I am not a medical doctor, nor am I in any way qualified or authorized to suggest medical remedies or infer that the home remedies that I tried ease pain in all cases. This is my personal experience with the virus intended to be taken at face value. Disclaimer #2) N=1. By this I mean I am only writing about myself, which means that the sample size is one here (shout out to my statistician friends). What happened to me probably isn’t representative of the greater population of those infected with Chikungunya. Again this is to be taken at face value.

 

This blog is organized into, what I found to be, the three distinct phases of the virus. The ACUTE PHASE was the first 11 days of the virus for me, the SUBACUTE PHASE was the following 3-4 months, and the CHRONIC PHASE is everything after that. If you’re on a mobile device, click “Menu” at the top of the page to navigate the different phases of the illness. If you’re on a computer, there should be a horizontal bar at the top of the page containing links to the different phases.

 

I hope you find this informative!  Happy reading!

 

272 thoughts on “About

  1. Isabel

    This blog is very helpful, I got chikungunya in September 2014 and I am still suffering every day. It was a particularly bad attack, I was so useless I had to spend almost 4 months in bed, couldn’t believe the level of pain in my joints, falling asleep and being unable to move when I woke up, crawling to the bathroom and going through the worst hell I have ever experienced trying to get on and off the damn toilet and back to bed. I like the description of ‘cat paws’ for the foot pain, because that is what my feet still feel like, I am increasingly unable walk in a straight line due to foot pain. I live in Bequia, St Vincent and the Grenadines, the island has a population of around 5000 and it seems almost everyone was affected, and many still have some symptoms even now. The local paper reported that one person had recently gone blind as a result of the virus. I thought the worst was over in January and February, but I had an attack of styes, 3 in one eye, around Christmas, then again in May 2015, then I had several boils, armpits, back, legs, even in my hair, usually occurring symmetrically, so odd. This has now been diagnosed as the start of Hidradenitis Suppurivata, which typically does not happen to women who have passed the menopause, who never smoked, who are not obese, who do not have a family history of HS. I am a skinny 68yr old woman who has never smoked or heard of HS before, basically, I should not have HS. I am sure there is a link to chikungunya, because the chikv virus causes the immune system to attack it, which results in large amounts of dead protein matter, which has to be eliminated from the body. HS causes a collapse of the acropine sweat glands, there is no research to explain this, large painful boils appear which last for weeks, usually they have a core of white matter, which apparently is the elimination of dead protein matter. A report states that HS often attacks people who have had serious arthralgia (joint pain – sounds familiar?) or a viral attack, (chikungunya virus?). I wish there was more research being done into chikv, or a determined effort made to make mosquitoes extinct. Have any other chikv sufferers had problems with styes, eye infections, boils or any other serious skin problems? I hope everyone who has shared their experience of chikv is now feeling much better, thank you for your contributions, it does help to hear about the endless variety of symptoms produced by chickv. I have now seen 5 doctors and 1 dermatologist, only 2 of them had heard of chikv before, more research is needed to establish exactly what the full after effects of the virus are, and if there is a link with HS, another debilitating disease that affects people’s lives for years on end with no cure.
    Isabel

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    1. Kimberly

      Good morning Isabel. I’m Kimberly and I have ChikV, I’m also a rheumatology nurse. We treat several patients with your disease and rheumatological diseases can be triggered by a virus. HS can be linked to many rheumatological diseases & rheumatological diseases can be caused by many “unknown factors” including infections & environmental. We can rarely trace the rheumatological disease to an infection, but that is my biggest fear at the moment. ChikV isn’t causing permanent damage that any studies can show, but it can be the start of an auto immune disease & I’m terrified sometimes of when will it stop being ChikV & the start of a real rheumatological disease, and being over looked as “give it time it will go away” just makes me scared to even ask for labs and frequent checkups to make sure it’s not the start of something new. Good luck sweetie.

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    2. Ana Paula Arcoverde

      Olá! Bom dia!

      Perdão pela indelicadeza de escrever em português, mas sou brasileira e tenho imensa dificuldade com o inglês. 🙂 Mas a tua história é tão importante para mim, que não poderia deixar passar essa oportunidade.
      Sou estudante de Educação Física na Universidade Federal de Pernambuco e pesquisadora júnior (que aqui chamamos de” Iniciação Científica”) em Fisiologia e Imunologia do Exercício. Atualmente, estou debruçada sob compreender a febre Chikungunya e sua relação com comportamento ativo ou não ativo, anterior, do paciente e suas repercussões sobre a severidade dos sintomas no paciente. Como deve saber, no Brasil, estamos vivenciando uma epidemia de Chikungunya, que está debilitando e comprometendo funcionalmente muitas pessoas. Meu objetivo é estudar como o exercício físico influencia sobre os sintomas agudos e crônicos da doença – principalmente os sintomas sobre o sistema locomotor.

      Será que poderia responder algumas perguntas? (Apenas se sentir a vontade, claro!)

      Em qual país vc mora?
      Vc diz no relato que todos os habitantes da ilha em que mora foram contaminados. Todos tiveram diagnóstico confirmado com exames?
      Vc se exercitava antes de contrair a doença?

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  2. Rosy

    Hi. It’s me again. I said I wouldn’t return, but, dammit! I have a detail that you can consider as important: I caught chikungunya in September 11 (I remember, because it was on my birthday), and I felt better two weeks after the start of the symptoms. But I had a relapse (or something similar) of the virus in November, 2. Until that moment, I’m showing NONE SYMPTOM of the illness, thank God. And I have a doubt: Do you would like make a trip back to the Caribbean, even if you remember that you caught this disease on a previous trip to Caribe? Can I catch this dreadful disease again? I hope not, my doctor said that’s impossible, unless the virus suffer any considerable mutation, who don’t occurred until the moment, and the statistics say that none person caught it again, but what do you know about this possibility? And how common is having relapses of that virus?

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  3. Rosy

    I said I wouldn’t return, but, dammit!, I said it so many times, but, now, I have an update (don’t be worried, it’s the good type of update): I would take part of a study about CHIKV (the virus who causes chikungunya fever), as a relate of case, and I should relate my symptoms during all those months who I was sick. And I’m asking you how do you think that I have to proceed during the study… I would like to make it in an informal and familiar ambient, as my house or a restaurant, maybe 😉 I’m always hungry, but I never become fat, thank God! hahaha I can talk very good in public, I usually use simple, but adequate words, and one of my dreams is to write a book about my life with my dogs. Do you would buy my book, if I write it? 🙂 and about the study… Weh, mommy accepted it, with my knowledge, because if I don’t know what I would do, I become VERY nervous, you can’t imagine it, but, now, the things are different, I accepted take part on it, because I know that it could help a lot of people around Brazil and the whole world, maybe, and I would like to be a doctor, one day, and when I look the paper with my relate of case and my initials, I would stay proud, because I’m helping something with it 🙂 I would like to be a doctor and travel abroad, sometimes I think that I would like to move to Costa Rica or any Caribbean country, one day, maybe… I dream with a better world, without wars, diseases, hunger and all sort of bad things, no, in my perfect world those things wouldn’t exist, and if, only if, anybody offers me a Nobel prize of Medicine or Peace, I certainly would refuse it, because never would be health and peace sufficiently in this chaotic world, so, I don’t deserve that prize. And one day I’ll write a book about my life 😉 do you would buy it? And do you took part in any medical study when you had chikungunya?

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  4. Rosy

    Hi! 😀 I know I said I wouldn’t be back, but I said it so many times that it became nonsense hahaha I have an update, who maybe you would like: maybe I’ll take part on a study of case about chikungunya fever, at next week. One good friend said that her university was conducting that research, and two of her colleagues want to talk with mommy (and me, of course!) about the research. I feel so much honored by that! My dreams are to become an infectious disease doctor (maybe the fact of that I caught chikungunya improved my interest on this fascinating Medicine specialization) and found a KBD (Kintamani Bali Dog) kennel (I simply love dogs, specially those exotic breeds, like that who I mentioned above). Maybe I’ll write a book about my life, in the future, and you would like that 😉 But do you know what can make me a bit more happy now? A trip around Caribbean. One day, maybe, I’ll visit Dominican Republic, Mexico, Turks and Caicos, Costa Rica (visiting this country is my dream), Puerto Rico, Panama, Bali, Italy, Seychelles island, Tahiti and so many other places. Costa Rica is a demilitarized country, with so much peace and beautiful nature, it’s the most closely related with the music “Imagine” of beloved John Lennon. He and other singers, like Bob Marley, we’re always dreaming dreams of peace and love, who make me hopeful about our future, even with all those sad things who’re occurring all days in the whole world. I would like to visit Costa Rica so much, and I’m sad because I’m not a Costa Rican girl hahaha but think that I’ll reincarnate as a Costa Rican in another next life hahaha I’m only saying it because I’m happy today. Happy by all. Happy by nothing. Only me and my life. And happiness, of course! Be happy, your self-esteem will give thanks and you could see how you’ll feel better, even if you’re with this nasty and dreadful disease called chikungunya. And I’ll take part of the study about this disease, as a voluntary guinea pig hahaha I’m not a very normal person, but I’m a dreamer, you may say. I dream dreams of peace and love for all of us, but if, only if, anyone offers me a Prize Nobel of Peace or Medicine, I certainly would refuse it, because we aren’t living at a place without violence or diseases, who we can call it as Paradise, but yes we’re yet at dreadful and nasty Planet Earth 😉

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  5. Jacqueline

    Thank you for your blog! I’m in New York with the
    disease since July 2, 2015- it’s a real pain and I’m also
    isolated. Nobody has heard about it at all here. I’m under doctor’s care but even from July the pain is great. It’s good to see this blog because I can gauge my experiences and share. Feel free to contact me!😊

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  6. Jacqueline

    Hello and thank you all for this blog. I’m at my wits end with this disease. I contracted ChickV July2nd 2105 while in Guatemala. I am still suffering with the severe pain in my legs and my hands (primarily fingertips) are so numb when I wake up in the morning. I am exhausted and in pain daily. I have been to my doctor, but she says there is not much she can do–I go to physical therapy twice a week to relieve the pain, and that is where they apply a hot wax to my hands and stimulate my legs with an electrical current. I wish there were some relief, because I don’t find the therapy works once I leae the office. This blog has shown me that I’m not alone. I’m a teacher and day after day I struggle with getting up at 5 in the morning to get to my students. I have not missed one day but am waning. Do my symptoms mean I might be soon to come out of this? I am hopeful each month but lose hope when more time passes and I feel the same.

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    1. Angelika

      You need to take time off work, at least three days, better a week and do cold-hot water treatments on all joints while mainly resting, eating well and mildly exercising. The hot-cold water treatments consist of immersing the affected joint(s) in a bucket/ bowl of hot water (as hot as you can take without burning yourself of having pain!!) for 3 minutes and then 1 minute in another bucket/ bowl of cold water (cold tap water with some ice in it, but NOT ice-water from the fridge!). Do this alternating 3 min hot – 1 min cold-3 hot – 1 cold etc., at least 5-7 times or until the hot water gets too cold. If it is a shoulder or knee, use two wash rags (towels) to wrap / sponge the affected joint for the specified times as you won’t be able to immerse those. Finish off cold and best use comfrey liniment or another joint herb to finish off while the joint is nicely warm and red from the increased blood flow to the area. For all Chik V weakness in joints and lingering (NOT acute) joint pain it is the best treatment. Do this for three consecutive days once a day or until the pain and weakness has completely subsided. You need to take plenty rest and some exercise during the time to allow your immune system to clear the stuck immune complexes from the joints. Drink plenty water and herbal tea as well. Do not use very hot water if you have diabetes, acutely inflamed Chik V joints, hematomas or other conditions – ask your GP first. I am a medical herbalist, had Chik V and found that this hydrotherapy treatment was extremely useful when I had Chik V plus it worked on all of my patients.

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  7. Vasuki Seshadri

    Hi,

    Found this blog very useful. I am based in Bangalore and there are lots of folks who are suffering from C Gunya. I am now into my 3rd month and the pain is rather unpredictable in terms of intensity. Have very localised pain in my right wrist and behind my right knee. Found this blog quite useful. My dad is also suffering from c gunya and his issues are quite different- more rashes, weakness and pain all over the body. Guess age is a factor since he is 82 years old.
    There is a siddha formulation called ” Nilavembu Kudineer” and I did try this in the initial week after the attack of CG. I know some folks who have used this and it has helped a lot. I plan to take another course this week to see how it works- “I am in the chronic phase”! The company that manufactures this medicine( is a herb) is called Vopec.

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    1. Isabel

      Hi Vasuki
      Has your doctor looked at your knee? I had so much fluid in my joints when my body was fighting off the chikv virus that I got Baker’s cysts on both knees. This is when the fluid that lubricates the joint increases to control inflammation and starts to leak into the area behind the knee through the joint.
      You can feel the soft lump of fluid behind your knee. Not much you can do except rest, and try not to bend your knee. It’s taken a year for mine to get back to normal so far, still can’t squat down, too much pressure and it makes my knee joint feel like it’s bursting. I took a lot of ibuprofen but found the best relief of all symptoms was a tea made with turmeric, cinnamon, fresh grated ginger, honey and fresh squeezed lime juice with hot water. I hope you and all other sufferers get through this as soon as possible.

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      1. Vasuki

        Hi Isabel,

        There is no swelling in my knees. My father has a lot of swelling in his feet though and as you have coorctly written, the only remedy is rest. Thanks for your tea recipe and I will try it. I am off any medication and things are much better. Get well soon.

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  8. Rosy

    I have a detail that you can consider as important: I caught chikungunya in September 11 (I remember, because it was three days after my birthday), and I felt better two weeks after the start of the symptoms. But I had a relapse (or something similar) of the virus in November, 2. Until the moment who I was considered cured, I’m showing NONE SYMPTOM of the illness, thank God. And I have a doubt: Can I catch this dreadful disease again? I hope not, my doctor said that’s impossible, unless the virus suffer any considerable mutation, who don’t occurred until the moment, and the statistics says that none person caught it again, but what do you know about this possibility? And how common is having relapses of that virus?

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  9. Jacqueline

    Thank you Rosy- it’s a good piece of information. And Vasuki- where do you get Vopac and how do you administer it? I’m still suffering extreme joint pain and it’s been over 3 months. Not to be graphic but right before period is worse almost debilitating and
    I feel I can’t move. Hands are numb in morning and
    I can’t move them until I get going. Legs, ankles and upper thighs are the worst. I’m losing hope at this stage. Thank you for all your comments!

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    1. Rosy

      I’m so glad that I helped you, Jacqueline. I only used acetaminophen and Tylenol for arthralgia (joint pain) and I DON’T had the rash neither swollen on my joints, thank God 🙂 I’m pretty fine, now, just commenting here because I liked this blog. I would like to move to any Caribbean country, one day, maybe…. A funny information that I discovered when I had chikungunya is that I have flexible joints! At least, the doctor said it to me hahaha but, serious, there’s any chance of catching chikungunya again? I hope not.

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    2. Vasuki

      Hi Jacqueline,

      Google Nilavembu Kudineer – the company that manufactures it is called Vopec. In case they don’t ship overseas, let me know and I will figure out a way to get it to you.

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  10. Jacqueline

    Vasuki and Rosy- you are both amazing! I’ve found this blog only recently and it has become a life line.
    This disease in New York is not recognized and my friends and colleagues think it’s not real that I’m in
    so much pain. I’m going to Google it this morning, Vasuki! I can’t tell you how moved I am with your thoughtfulness and help. Lots of love,
    Jacqueline😘😘😘

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    1. Rosy

      Hi, Jacqueline,
      More one time, I’m so glad that I helped you! ☺️I also like your name. Do you caught it in NY? Seriously? I’m Brazilian and I caught this dreadful disease in Fortaleza, last year, who was year of World Cup, because it have a big flux of tourists proceeding from all corners of the world, and, obviously, one of them was infected with CHIKV (the virus who causes this disease)… Here on my city this disease’s too rare that I even took part on a study as a relate of case! The worldly know endemic areas are Tanzania and some countries of Asian Southwest. And I’m planning to move me to Dominican Republic 😉 but, seriously, you contracted it in NY? I can’t believe on it!

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      1. Jacqueline

        Hi Rosy! Oh no…I caught this in Guatemala—not New York! My doctor says it is nearly impossible to contract here in New York. I was there last summer for one month and got bit on my second day there. Where I was staying was by a river–and the mosquitos there were infected.

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    2. Vasuki

      Jacqueline,

      Most welcome and let me know. Have been in a pin free state for th past 4 days and it feels wodnerful. On a more philosphical note,I told a friend that wanting to be in a painless state was quite painful and the moment there was complete acceptaance of the pain it became quite painless!

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      1. Jacqueline

        Vasuki, I’m so happy for you that you are in a pain free state!! I know how that must feel and wish it would come for me!! Maybe I should meditate too–I hear power of positive thinking is key–it is what is keeping me moving forward. The pain is truly great, though. Nobody understands!

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      2. Vasuki Seshadri

        Hi Jacqueline,

        Thanks and hope your condition improves quickly. Will be playing my first round of golf today and hope things hold up- do coach golf and publish books on the spiritual subject among other things. When you get a chance do check out “Life beyond death” on amazon by Anil Sharma. I had the privilege of re-writing and editing the book in 2011 and also published it. Meditation will definitely help and I have been very deeply on the spiritual path since 2002. Also for the past 3 days I started oil pulling and it also helps in many ways. Give it a try and it is pretty simple.

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  11. Isabel

    Here are some links referring to chikungunya which readers of this blog might find helpful. Second one is technical but you can Google terms you don’t understand to get the full meaning.
    wikihow.com How to Recover from Chikungunya
    wwwnc.cdc.gov web address is as typed with 5 letters no full stop/period.
    Post-Chikungunya Rheumatoid Arthritis, St Martin it explains how the Caribbean outbreak started in St Martin, explains 2 strains of chikv but I’ve read there are 4. You are immune from each strain after you get it, so you would have to be very unlucky to catch it 4 times, which would mean you caught a different strain each time.

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      1. Rosy

        Dear Vasuki,
        You’re correct. And India is an endemic area for this disease, no? Yes, yes, I know 😏 and according to my doctor, she said that worldly’s endemic areas are Tanzania, in Africa, South and Southwest of Asia, as well some Caribbean countries, and her first ask was if I visited one of those endemic areas, who obviously wasn’t my case, but the more plausible hypothesis was that I caught this disease in Fortaleza, a famous holiday spot here in Brazil (I’m Brazilian), and it was in year of World’s Cup, so, I probably became infected due to a mosquito who bitten any tourist who was sick with this virus. I spent five months with much pain, and more four months with a slightly joint pain, but I only used medicaments (Tylenol and Acetaminophen) during the first five months of the start of joint pains. One interesting thing was that I DON’T had the skin rash neither swollen on joints, only a excruciating pain during the first five months and a slightly fatigue during the subsequent months, but, now, I’m cured, thank God. The joint pains were too intense that I was crippling, and my body was bent like an old woman, despite the fact of being a teenager. I had some wrong diagnoses, as dengue fever (who’s endemic here on Brazil), JIA (Juvenile Idhiopatic Arthritis) and RA (Rheumatoid Arthritis), who were all discarded, thank God. I also lost 7kg IN ONLY A WEEK and I also WASN’T ABLE TO WRITE due to joint pains! This was pretty tense. I also had a bad headache and pain behind my eyes, but it’s more characteristic of dengue fever, so, doctors mistook my case with a dengue case, and I had to make dengue exams twice. All of them negative. I made chikungunya exam. Positive. That result wasn’t surprisingly for me, because I knew what was this disease, because there was anything about it on a TV program, so, I was most tranquil about it. But it wasn’t sufficiently to avoid another wrong diagnoses, as JIA and RA, who let my family scared, but, for me, those medical fails was nothing, maybe due to my ignorance about JIA and RA or even maybe because I really wasn’t believing that a healthy teenager could develop those diseases. Sometimes ignorance is bliss, as the proverb says 😀 I started to use the wrong medications and I felt worst, consequently, I stopped the use of those remedies, and another doctor confirmed the result of the exam: it was CHIKV (the virus who causes chikungunya) who was causing my joint pains. I liked the site who you recommended us, because it helped me understand what happened with my body, during the time who I was feeling bad. Luckily, I’m cured and doctors says that we can get it only once, but I don’t believe on this information, so, I’ll certainly take more caution with mosquitoes, and I hope you also do it. Keep hopeful, rest a lot and you certainly would become cured, don’t import how time it’ll leave, and you could see how really strong you’re. Namaste 🙏❤️

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  12. Vasuki Seshadri

    Hi Rosy,

    Thanks for your note. Interestingly, in India it is more an urban phenomenon and quite rampant in Bangalore. Has of course been accentuated by poor garbage disposal etc. In my case, I told folks that a 49 year old body became 89 in just two hours-thanks to cg. Luckily have a very good doc who of course found it very routine. I have hardly taken any medication but have taken ” Nilavmebu Kudineer” for 5 days right in the beginning of my attack( Sep 8th). Overall feel much better and the last two weeks has been largely rest-thanks to the cyclonic weather that makes us feel we are living in Scotland! The site that I recommended has a good sensible doc answering questions with a lot of earnestness which itself is very rare in the times we live in. Thanks again and take care.

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    1. Rosy

      Thank you, my dear! 😘 namaste and rest a lot. I remember how it started on my case: a bit of malaise, who I obviously ignored, and, at the midnight, I had a sudden onset of high fever, who lasted some hours, and I became unconscious due to the intensity of the fever, later, when I awakened, I was feeling a throbbing headache and a discomfortable pain behind my eyes, and s strong pain on my right hand, who rapidly attacked all other joints, unless hips neither my back and I was with an unquenchable thirst, always crying out for a water cup, and I think that the fact of drinking so much water and coconut water helped me so much. You could try it. I don’t had the rash. At the next day, I visited the doctor office, and she asked me for travel informations, and I said that I only visited Fortaleza, one week after the start of symptoms, who I thunk that it wasn’t too relevant, but I was too naive. This information WAS relevant, of course, because Fortaleza have a big flux of tourists proceeding of all corners of world, and, obviously, one of them was infected, and a mosquito bitten the infected person, later, infected me. When I tried to get down the stairs of doctor office, I simply wasn’t able to do. My body was bent, I simply was crippled, I couldn’t make nothing, except lying down at my hammock (I prefer sleeping in hammock than the bed), and obviously I wasn’t able to go to school. I lost 7kg IN ONLY A WEEK after the start of the symptoms, but I don’t had the rash neither my joints became swollened, and I DON’T needed to go to the hospital, thank God.

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    2. Michelle

      Hi Vasuki, thanks for your tip on the Nilavmebu Kudineer. I just placed an order for it and look forward to trying it out. Could you also share the contact details of your doctor please? I live in Bangalore too and could use a bit more support on the ChikV symptoms which hit mid November and seem to be getting worse over the weeks rather than better… Possibly because it is exacerbating the Fibromyalgia that is part of my life.

      Thanks in advance,
      Michelle

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  13. Rosy

    I love dogs and I would like to found a KBD (Kintamani Bali Dog) kennel (I simply love dogs, specially those exotic breeds, who are very little know here on western world), one day, maybe… Maybe I was an Eastern girl on a previous incarnation hahaha I had chikungunya, as I talked, but I also had dengue this year and I had malaria when I was 12 years old, and I have to talk a thing to you: malaria is ANOTHER nasty, debilitating disease. Malaria fever is pretty bad, I remember that I was on my hammock, shivering of fever, extremely somnolent, when I caught malaria. And that scenario repeated three years after, when I caught chikungunya, but very worst! Caracas (it’s a local Brazilian slang term, similar to “yikes” who yours use in USA)! Dengue is also a bad thing, and some persons will talk you that dengue is the “break-bone fever”, but I believe that the TRUE “break bone fever” is chikungunya, because my joint pains with dengue wasn’t intense, but when I caught chikungunya, I had to walk curved, like an old woman, and when it occurred I was only 14-years-old. In pain aspects, chikungunya is worst than dengue and other knew arboviruses until the moment. PS: my joint pains were too intense that it looked like all my bones were breaking. I simply wasn’t able to write due to the intensity of pain. Obviously it’s worst than dengue. I hope that don’t exist one arbovirus that is worst than chikungunya. And I also hope that I wouldn’t catch malaria, dengue or chikungunya again. Only for comparative effects, my dengue wasn’t too bad as much persons talk it is: I DON’T had fever neither the rash. OK, when I caught chikungunya, I don’t had the rash, but I had a high fever and I had also terrible joint pains, who DON’T occurred when I caught dengue neither malaria. Malaria can debilitate you so much, with an intense fever, dengue can also debilitate you, but my case was too mild, if compared with other cases, and I know that dengue can cause hemorrhagies, and chikungunya is the most painful arbovirus who exist, until the moment. And I hope that don’t exist other arbovirus worst than chikungunya neither we can get chikungunya twice. I really hope it. And I hope that you become cured soon, my dear Vasuki. Namaste ❤️🙏 rest a lot, drink so much coconut water and do what make you happy, and you could see how it would improve your self-stem and you would become cured rapidly. If you want, you could try Ayurvedic Medicine or even Homeopathy. I don’t tried it at all, but I used some Ayurvedic medicaments, but, unfortunately, I don’t remember what were those remedies 😦 I used so much Tylenol, Acetaminophen and I was alternating some hot and cold compresses to relieve pain. You could try those treatments who I recommend, if you want 😉

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  14. Rosy

    Hi, Chris,
    I had chikungunya, as you know, and, now, I want to visit Caribbean, maybe Curaçao or Cancún, in July of that next year, but I have fear of cAtching this horrible disease again. PS: the hotel what we’re thinking on stay in Cancún is located on a neighborhood with many cases of the disease at the city and I’m scared about the possibility of catching it again, although many people says that it’s impossible, unless if the virus suffer any considerable mutation, who don’t occurred until this moment, but I’m traumatized due to my experience with it and it’s disturbing my dreams of visiting Caribbean. Should I visit Caribbean in 2016/July?

    Your Brazilian buddy,
    Rosy

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  15. Rosy

    Hi, Chris,
    I have an important advice to all yours… Here on Brazil is having an outbreak of zika virus, a relatively new disease who initially looked like a weak form of dengue but it proved to be worst than both dengue and chikungunya. On north and northwest of Brazil is having an outbreak of zika, and this disease’s causing microcephaly and guilain bare syndrome, as you can confer above… My city is being horribly affected by this disease and the doctors are concerned about it. Zika’s worst than dengue and chikungunya, because it have nasty symptoms and the sequels are horrible, sometimes irreversible, like microcephaly and guilain bare syndrome. The only “good side” of it is that you can’t get it twice and the prevention is the same as for dengue and chikungunya. It looks like that we, who’re lucky of being inmune to CHIKV weren’t immune to the horrible symptoms and sequels of ZIKV and certainty wouldn’t like to see ours beloved friends and familiars suffering with it neither babies being born with irreversible neurological problems. More one reason to protect us against it. The first link’s about the zika virus and the other is about the disease and its sequels.

    https://en.m.wikipedia.org/wiki/Special:History/Zika_virus
    https://en.m.wikipedia.org/wiki/Special:History/Zika_fever

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  16. Silvia Figueroa

    Hi everybody, I’m so happy that I found this blog. I contracted the virus while visiting El Salvador in November of 2014. I was 49 years old in good health, actively going to the gym five days a week. I still have symptoms from time to time I get relapses with mild fevers and diarrhea. I just hope that the virus leaves my system soon. I still have joint pains, can’t wear high hills for too long as my feet still get swelling. The tip if my fingers still hurt. My right arm is finally getting more flexibility as I couldn’t lift it all the way up or undo my bra. I had an arm manipulation about four weeks ago, and I think that and the therapy has helped a lot. I wish to all of you a fast recovery.

    Silvia

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    1. Rosy

      I also have relapses of CHIKV, with mild fever, headache and joint pains, but the only difference is that I DON’T have had rash NEITHER vomits or diarrhea during all the evolution of the disease neither during the relapses. During those relapses, I only have joint pains, headache and mild fever. I would like to know how common it’s…and until I would still having those relapses. But is pretty alleviating to find another person who have relapses of CHIKV to compare notes about our relapses!

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      1. Jessica

        Hi Rosy,
        I got Chik in The Grenadines in August 2014 while sailing. Not sure which island was the culprit. Since then I have had sever arthritis in my hands and feet only, very debilitating. One year later I got a horrible rash which my dermatologist called a viral exanthem. I then got it again a month ago. The only thing that will get the rash under control seems to be a mega dose of Predsinone. So I wait and wonder when will this he’ll ever end. No one knows and know one has any answers. They just treat it symptomatically as needed. I also take Meloxicam and a new arthritis drug for the hand and foot pain. Still waiting for it all to kick in. Before Chik I was a fast paced go getter. Now I move slowly. One interesting thing to note would be that I also contracted Lyme disease in 1999. I wonder sometimes if my body is reacting uniquely due to two bug bites? Who knows. My thoughts go out to everyone who is also suffering along with me.

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  17. Rosy

    Hi, Jessica,
    So, do you also have relapses…and your relapses apparently are most with dermatologic symptoms, as opposites as me, who don’t had none dermatologic manifestation, what would be easily perceived, because I’m white. My relapses are with return of joint pains, mild fever and fatigue. Sometimes I have those relapses and I face it with tranquility, as it would be a “normal” thing on my life, although it isn’t 😦 those relapses looks like you’re having the disease again, on a most mild version, although it can’t occur. I had one relapse a week ago, and I would like to know until those relapses would still occurring with me….

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  18. Ellie Mae

    Hello Chris, hope you are ok, it seems you haven’t posted any replies in awhile. Thanks for writing all of those details. While reading your blog, I often would exclaim – I had that! – when reading about your symptoms. I didn’t have most of them as badly as you did, thank God (though I did have potty problems, which you didn’t seem to have). In addition, your wry writing style had me chuckling or smirking often.

    I have lived in Tulum since August, and came down with symptoms the night of November 26. The next day, doctor here looked into my blood-red eyes after listening to my symptoms and declared I had ChikV, but two lab tests came back negative. They don’t test for Zika here … yet.

    The symptoms all went away after about a week. They were gone completely for nearly three weeks, but now I am incredibly tired, foggy-headed and physically light-headed as I enter the second month. I just had another high fever – almost one month to the day when the first symptoms appeared. The locals tell me ChikV “relapse” is normal and I’ve wondered if the virus has mutated a bit in this region, because I don’t see the relapse mentioned in other areas where this dreadful virus attacks people.

    Anyway, I post this to thank you, and to put it out there in case my slight variations of your experiences can help anyone else.

    Best regards,
    Ellie

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    1. Rosy

      Zika’s spreading a lot here on Brazil, but keep tranquil, it don’t arrived on Mexico yet. I’m pretty sure that you’re having relapses…although doctors said that it’s almost impossible to occur, I still having relapses of that dreadful disease, even if you consider the fact that I caught it last year, and I’m having relapses since 😦 and I also had that high fever one month after I contracted it. I don’t had the rash neither diarrhea neither swell on my joints, so, I never had the “classical” chikungunya symptoms at all. My relapses looks like exactly the first time that I had it, unless if you consider that I become very tired and don’t have to walk bent during the relapses, thank God. To others, my relapses appears to be a mild case of dengue or even a flu, although I feel very bad during relapses. I hope that you’re feeling better and have a happy New Year 😘😘😘

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  19. Suzie

    It’s nice to have finally come across something that describes the exact symptoms I have, and that, at some point, it will get better. Thank you for documenting your Chikungunya experience!

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  20. Rosy

    Hi, Chris,
    How time! I hope you’re fine now 🙂 it seems you haven’t posted anything in those times. I still have CHIKV relapses. I’m going to Bahamas on a cruise in July.⛴🏝🏖 it’ll be very fine to me, both physic and emotionally, I hope, as I can exercise myself at the beach and relax a while. as you can see, I’m enjoying life, despite the fact of still having CHIKV relapses. Now, my joints are cracking LIKE CRAZY, although I don’t feel as much pain as in the start of the disease, so, I’m in chronic phase, I conclude. And how are you? Is CHIKV finally gone? Or you still feel it on your body?
    Your Brazilian friend,
    Rosy

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  21. Janis K. Ponce

    Hi All,
    I posted back around January 2016 that my chickunguya nightmare lasted about 3 months and quite miraculously pretty much ended around midnight New Year’s Eve of 2016. All has been pretty good except for some mild to moderate wrist, ankle weakness and bottom of feet will always been tender to walk on. But the last couple months it sure felt like the Chickunguya had come back! Legs and arms had a vague just under the skin sense of almost a rash, and wrists, ankles, bottoms of feet, left shoulder and neck have been hurting enough that I finally gave in and took ibuprophen and made appt. with my foot MD. He said you definitely have a systemic inflammatory response going on throughout your entire body – Great! For sure it’s back. I was getting very tired and down and didn’t even want to do my 4x a week dvd exercises. That’s a huge sign – I’ve never given up exercising. I thought I would look into pilates – supposed to be exercises originally intended to help the war wounded. Boy, do I feel like that! I found someone that had the usual pilate equipment but also the “Power Plate”. I spent only 1 hour with a private instructor on the power plate and OMG – the very next morning I sprang out of bed so fast I actually missed my footstool (high bed and I’m only 5’2″) and I landed hard on my feet. My husband shot up out of bed and tried to grab my arm knowing this was going to be a disaster and believe it or not – I was ok! My feet felt a little sore but nothing like they usually are in the morning. I felt so much better I called the instructor and almost cried telling her what a miracle the power plate was. SideBar: Nothing gets rid of cellulite – I’ve tried. My husband even said your legs look smoother! I’ve tried spa treatments, creams, etc. for the darn cellulite and I’ve asked my husband if the back of my legs looks any better and he always is honest and says , Well….not really. But he says my legs look better now – after 1 session!! – I’m blown away. I’ve had 3 sessions now and still getting better – the chickunguya and cellulite and the little wrinkly skin that starts after 55+ years all getting quickly and noticably better. Look it up online. Too long to explain, but it works with G-force. 1 minute of standing on the power plate doing 20 squats is equal to doing about 1500 squats regularly! And it’s fun – I hardly feel like I’m working out. Crazy – anyway I’m just throwing this out there for anyone interested. Never give up! Janis

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  22. Jacqueline

    I just wanted to post because I first posted last fall and was stricken with chick-v since 2 July 2015. I came out of the disease just a month ago and was very leery about writing and saying so, because it has been so horrible. I have to say it is true that it lasted about 10 months. Now, I am feeling like normal and still have a little bit of occasional wrist pain, but the feeling of severe pain each morning is not with me anymore. I don’t know how I made it through. I did physical therapy, every single kind of treatment, hand hot wax therapy and every single kind of doctor…nobody had any cure but time and patience. I wanted to thank this blog for giving me sanity. When I first got bit, this blog helped me through and made me realize that there were others with the same disease and who could help advise me. I suffer hypothyroidism which made my disease worse, according to my endocrinologist. He told me my metabolism was so devastated by the disease and my metabolism was slow to begin with and so this slowed down the chick-v from getting out of my body. If I can help anyone with questions or anything, please let me know as these folks here did for me. It does pass..we’re all different with dealing with it, but it does pass.

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    1. Andreas

      Hi Jaquline,

      I’ve tested positive fo ChIKV after almost 5 months of not knowing what I have. I live in sweden where the doctors havent heard of the virus.
      My symptoms is a little bit different from all other ive been reading about. Im really scared and frustrated of not knowing whats happening to me.
      Ive posted here on the blog with my story just below this comment. I would be super grateful if I could contact you in some way to have someone to talk to.
      You can reach me at antez88@yahoo.se.
      Or read my post below and see what you think of my symptoms.
      Thanks in advance!
      Andreas

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  23. Andreas

    Hi,
    Cry out for help about my symptoms.

    Could this be symptoms of CHIKV?
    I was in the phillipines in feb 2016 and caught a really bad flu with sinus problems, ear infection and throat infection. After a month i got a really high fever and had really big pain in my muscles and joints. The pain only lasted for a day and then went away. I was still very bad in my flu symptoms with throat discomfort. About a week later I went to the hospital and they ran a lot of tests on me which all came back neg. About now I started having pain in my right wrist and hand. This pain eventually spread to my left wrist and arm. After almost 2 months with this pain every other day it spread to my ankels, legs, knees. The doctors were cluesless whats wrong with me, but about 3 weeks ago they took a CHIKV blood test and it showed that I had CHIKV infection in the past (prob within 4 months – as long as you can show antibodies).
    BUT my worries is that it doesnt really ad up with all the symtoms and how it all started, can someone please help me get my head around this, Im really worried about this!!
    During all this time (6 months now) I had a sore throat, “burning” pain in my joints and muscles, which differs from day to day, numbness in hands and legs every other day. I also have extreme fatigue lately (its gotten worse last month). And I feel like shit mentally in every way (maybe not so strange).

    Could this really be CHIKV symptoms?

    Thanks in advance.

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    1. Rosy

      Hey, Andreas! I’m NOT Jacqueline nor Chris (the blog author), but yah another commenter who has got used to this painful virus, since I’ve had this for 22 months, almost 2 yrs, and, sincerely, I don’t believe it may be CHIKV, and I can only suggest yuh to do CHIKV test AGAIN, so yuh can be sure if it really was CHIKV or nah. And, BTW, I can relate to the ‘mental shit’ feeling, as yuh described it, but I feel like I’m kinda depressed and I was thinking on suicide – NOT due to CHIKV itself, as it isn’t as painful as it was, and, to be sincere, I just feel a mild joint stiffness, but I was wondering on suicide due other problems, mostly related to the fact of fearing I can lose a loved one, as it occurred on a recent past –, so, I’m sure I was even worst than yuh, in which refers to the ‘mental shit’ feeling, and I’m doing sessions with a psychologist 😉 but if I faced this without more problems, I’m sure yuh can do the same. For more help, do the CHIKV test AGAIN and find a psychologist ASAP, he/she may help yuh with the ‘mental shit’ feeling.
      Hope it helps,
      Your Brazilian-Caribbean bud

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      1. Andreas

        Hi Rosy,
        Thanks for your reply!
        I had CHIKV due to my test, that is for sure!
        Regarding my mental emotions, I understand that thats “all in my head” and not due to the virus. What Im wondering about is the physical feeling I have . With flu feeling still and joint and muscle pain, and that the pain seemed to be getting worse after about two months.
        Regards,
        Andreas

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      2. Andreas

        Also got to say, that same island that i visited had several cases with CHIKV during the same time.
        To be honsest I wamt to be chikv, because then I know what im up against.

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    2. Jacqueline

      Hi! I just read this- sorry it’s been a bit since I’ve checked here Andreas- but it sounds like it’s Chick-V because the pain is excruciating and lasts a long time,
      So if the test came positive for 4 months ago it’s normal for you to feel this way still. Sometimes I get pains still and it’s chick- v so don’t panic you have to rest and relieve the pain…it takes time.

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      1. Andreas

        Thanks for your reply Jacqueline!
        Did you experience any numbness in your feets/hand in the morning when you woke up? I have that pretty much every day.

        Best regards,
        Andreas

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    3. Kim

      Hi Andreas,

      I contracted chikungunya in January 2015. Unfortunately it is almost 18 months ago and have had many relapses. I live in Australia and have also found not many people or doctors have heard of it. The pain in my joints is now not as acute as it was but it is still a constant dull ache. I have a headache fatigue mild fever eye problems, I feel pains in my hands and feet as well as many other joints. My hands and feet are numb in the morning and at its worst I had a chronic burning sensation on the base of my feet. I have become quite depressed at times while suffering the symptoms and feel there are not many people to discuss this disease with as I feel no one understands what it is like. I have read this blog many times over the last 18 months and have found it has helped just to hear other people’s symptoms and realise what I have suffered with is related to chikungunya. I do hope everyone has some relief and end to this nasty disease.

      Kim

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      1. michelle walker

        Hi, I had the same pins and needles sensation as Lisa after I had chick V. It lasted for months but eventually went away Unfortunately this virus just seems to leave so many symptoms which are hard to cope with. But after almost 3 years, barring a relapse, they seem to have gone. Most people I know had the same experience, and where I live many persons got sick. I hope this helps.

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    4. Neeta

      I feel India become capital of chikunguniya , I came with my husband from canada on 9th sep morning to mumbai international airport ,my hubby called uber cab but this cab is not allowed in exit main gate and we have to go in parking lot no.5 and there in the morning 6 am i got mosquto bite and exact after 12 days fever started and i took crocin and my hubby took me to movie i thought it is simple fever /flue etc but my leg was paining we watch the movie but after movie iam not been able to standup from chair with my hubby support very slowly i am able to gone in to car with extreme knee,ankle pain , 2nd days we took all malaria conected test , normal malaria, dengue , cbc, RA etc all came normal , and same day my hubby took me to hiranandani hospital and they admit me , they kept me on antibiotic and steriod because my pain become unbareble with swollen leg and rashes we are pretty much sure that this is chikun but again rapad test shows negative then they done PCR test its dignosed chikungunya i admitted on 21/9/2016 and came back to home on 28/9/2016 , since last 5 days i have stop any pain killer/steriod as i have many time getting severe joint pain but right now iam on herbal medicine and homepathy iam having Eupatorium perfoliatum 200 six drop 3 time a day , in aurvedic iam having ashwagandha and chandraprabha vati 2 tab each 2 time a day , but still unable to go out of home or unable to climbstair as we are staying in 3rd floor without lift building in mumbai , this pain is unpridictable some time knees , ankle ,lowerback and walking become very difficult , only god knows when i will become normal , but pain become atlest 50% reduce then initial stage

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  24. Rosy

    Yah, Andreas, maybe yuh’re right. I have to say your symptoms were intriguing ones, ’cause yuh had flu-like ones, not “typical” chikungunya symptoms – which, shall I say, doesn’t necessarily are identical from one person to other –, and I didn’t the rash nor vomiting/diarrhea, only fever and joint pains, apart from weight loss, so, wha’ I wanna say is that this fucking virus can manifest itself on many ways, with a plethora of symptoms, which can range from flu-like ones – as in your case – to fever and joint pains – the most common ones –, but this illness DOESN’T have a “pattern”, as yuh may have noticed from this blog, so, if yuh feel something “new” or “uncommon“ for us, who’re already part of “CHIKV community”, doesn’t hesitate writing it down here! 😉 and, BTW, are yuh still with that “mental shit” feeling?
    Hope it helps,
    Rosy

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  25. Lyra

    Thanx very much to all of you who shared in this blog. I caught this chikv virus august 15,and i’ve been on and off from my teaching job since then. The endless pain seems to transfer from one point to another. i have a bad case of insomnia which i didn’t suffer from before despite my age,i’m 46. I feel so weak and achy and tired i have to apply for a sick leave for one month. I take B Complex, vitamin C (2000 mg per day!) and D3. I do a lot of stretching,3 to 4 times a day and drink lots and lots of water including coco water and lemon grass tea. Sad thing is, here in the Philippines, most medical practitioners do not recognize chikv and people have very low level of awareness of this virus despite its prevalence. It’s often misdiagnosed as a severe case of flu or dengue. Reading through all the tortures of chikv you have experienced, it’s hard to say when I will be back in my old self. Your posts keep my spirits up,that this is not forever. Thanks a lot, God bless us all!

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    1. Andreas

      Hi Lyra!
      I also contracted Chikv in the Philippines during March 2016. I got it on Siargao. Were did you get it?
      I still suffer but it has become better.
      /Andreas

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  26. Kimberly Tayloe

    I’ve had ChikV since September 2015. Due to becoming a LPN & changing insurance in 2014 I have a new primary care physician and he “tried” but I really hadn’t known him long enough for him to really believe or understand my condition. I work for a Rheumatologist and he said it will go away and so did our top rated ID doc. I’m the first case they have seen in real life and the compassionate caring side of things kind of got missed & I was tired of being passed around or being told it would end soon just wait it out. I finally went to see my psychiatrist because of the horrible depression the suffering had placed me in about 6 months into it. He’s given me lyrica for the neuropathic pain that everyone denied could be due to ChikV. A very low dose of Adderall for the extreme fatigue the pain and depression gives me. I’ve had good days and weeks here around the one year mark but I’m flaring up right now and the joint pain, deep bone pain, neuropathic pain and fatigue has me at my wit’s end right about now. I’ve come closer to God, I’m finishing up my RN & I’ve got a new boyfriend who understands. I don’t take for granted my good days, and some days I just have one or two little complaints that are manageable and seem like nothing compared to life a year ago. This week following hurricane Matthew has me in so much pain I feel closer to the beginning than the end. So many websites about ChikV have to be translated and there are just studies, no real facts. & I know genetics play a role in many races, so I’ve always wondered about how this plays out in Caucasian Americans. Do the studies from other countries apply to my genetic make up? Am I really losing my mind? Because this shit doesn’t disappear, what the best rheumatologist in eastern NC studied in Med school sure as hell don’t apply to me. I’m totally with the author it does get better! & I’ve seen pain free days, it’s just so nice to know another American’s struggle and fight and who treated them and this blog really made a difference during a little set back in my recovery! Thank you for writing this!!

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    1. Andreas

      Hi Kimberly,
      I totally can relate to what you are experiencing! I’m a 28 year old who contracted Chikv in Feb 2016 in the Philipines and still have lots of pain, especially neuropathic. You are one of the first stories that I heard about that also have neuropathic pain and my so called doctors have also been saysing that it will pass within a month or two, I’m now in my seventh. Would be helpful for me of I could come in contact with you if its OK, feels like I’m alone in the world with this right now. If you want you can email me on: andreas.farjevall@yahoo.se.
      Best regards,
      Andreas

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      1. Kimberly

        Hello Andreas, yes I’ll e-mail you later. It’s going to be from Kimbolinamarie@aol.com

        In the mean time here is a link that I just found. I’m a nurse so I am use to reading studies, but if you scroll through you will find the nuts and bolts at the end without a lot of medical jargon. Good luck. I did try gabapentin, but it wound me up & not in a good way. Lyrica has been the best so far!! I’m also so thankful for my psychiatrist- he loves weird shit so he was all over experimenting with medications for me. I am so thankful. The neuropathic pain is what made me absolutely lose my mind. This link was one of the first that spoke of neuropathic pain.

        http://bmcinfectdis.biomedcentral.com/articles/10.1186/1471-2334-10-31

        Best regards, Kimberly.

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  27. Nikita

    Hello,
    I am 19 years old. One month ago i was diagnosed with chikungunya. At that time i had terrible pain in my joints and muscles continuously for the two weeks. Then after two weeks i had to start attending my college again. so i joined. I thought i would be perfectly fine in a week or so but it seems that i dint recover much even after 5 weeks. I can barely walk and i was thinking of hitting the gym soon but i cant even walk properly, i can’t climb stairs as freely as i used to, and especially i cant pick any object of 1kg or more due to my wrist pain. I am feeling like a 60 year old woman. I want to get back to normal as soon as possible.
    Can any one of you give me tips of how to recover soon.
    Thankyou

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    1. Rosy

      Nikita, I can relate to yuh pain. I’m a 16-yrs-old lady, and I’ve been with this fucking virus for over 2 yrs & 11 months/almost 3 yrs, and I still feel some joint pain. Try doing some hydrotherapy, later, water aerobics – in July I did them…directly into the sea, at Providenciales, Turks & Caicos!, where I come from, and it seems it helped me enough, but I’m still doing them on the local pool -, apart from taking pain relief medication, and I’m doing weekly sessions with a psychologist, and it has been also helping me enough for all over those years. Try doing whatever yuh wanna, as long as it helps yuh to stay positive, ’cause I’m sure yuh’ll overcome this illness, as I did. Now I’m just with some secondary sequelae, such as sloughing skin – ironically, I NEVER developed skin rash through the disease course – & sometimes joint pains return, although PRETTY milder than they were almost 3 yrs ago. Just FYI, on the acute phase, I wasn’t able to write nor to Try seeking BOTH a doctor – infectious disease one & reumathologist too -, physiotherapist AND a psychologist would be of great help also. BTW, where do yuh live? I’m from Providenciales, Turks & Caicos, but I’m now living between Brasil and Martinique. Wha’ a crazy story!!! I hope yuh find those professionals I recommended yuh, and, if it isn’t possible, try contacting any international NGO, such as MSF (Medecins Sans Frontieres). Try being a chikungunya ambassador where yuh live, by teaching people how bad this illness can be, and teaching them not to let pounded water. But, first of all, try HEALING YUHSELF, by finding those specialists. And try using some homeopathy or Ayurvedic treatment for joint pain or fever too, I didn’t used it, but I’m sure it’d be great.
      Hope it helps,
      R

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      1. Nikita

        Hello Rosy,
        I will look forward for the hydrotherapy and homeopathy medications. BTW i am from new delhi , India.
        And Thankyou so much for your advice.
        Take care
        N

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  28. C+W Big Adventures

    Hi There,

    Just wanted to say thank you for sharing this blog. I am with the Peace Corps in the Philippines right now, and I contracted Dengue and Chikungunya (double wammy) about two months ago. Its tough finding much online about the ongoing affects, and this is by far the best source of validating my own experience. I am in what you describe as the sub-acute phase, and seems like on a similar path as you were. After the first ten days, the next month was just weird. I felt foggy everyday by mid-afternoon and could not keep my eyes open past 7pm. Concentration was just so hard, and I never have had issues with attention, focus or concentration. And my eyes burned a lot, like I had a fever, but I didn’t. But that seemed to pass about a month ago. But now a month later, looking back, I have had about 1-2 days per week where I get the same symptoms of the first month out, but only for about a day. It seems to come on days after a lot of physical activity and time in the sun, but I wake up very achy (but not the aches and pains you feel when you exercise, just a more chronic feeling achiness) and just plain exhausted, and pretty much need to sleep much of the day. I have never been a napper or one to lie in bed all day, so its a big change in my life. But more than anything, it is the way this messes with your self-esteem and self-worth> I feel very lazy on these days and feel bad when my wife or friends want to do something and I can barely get out of bed. I am not depressed, I know that, but on those days, I feel much like I am depressed (I have experienced depression in the past). All this to say, your blog has helped me feel validated about these symptoms and helpful in being patient with myself as I continue to recover, so I thank you for your time in sharing and wish you ongoing recovery and well-being.

    Chris

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  29. Tara Anderson

    I was diagnosed with chikungunya in August of 2013 while living in Jakarta, Indonesia. Over three years later I still have joint pain. I am back in America now and I went to a doctor a month ago with hopes of getting more information. Doctors in Indonesia and Singapore just wanted to give me pain medicine.
    The doctor here merely took an x-ray of my hip and when it was determined I did not have actual arthritis it was dismissed. I have bunions on my feet that were not there before I contracted the virus. My feet, knees and my hip all still continue to hurt.
    I am a very active person and I find that when I exercise things get worse. I am now 43 and have always been very healthy and active. I am now limiting a lot of my exercise because of pain.
    Another issue I noticed is that I am tired all the time. Also while in Indonesia I contracted Epstein-Barr, typhoid and E coli. It clearly was not the place for me and I only stayed one year.
    I would love to know if anyone else has gotten bunions or is struggling with fatigue. I am feeling at this point that my hip and feet are just going to continue to hurt. I want to look for a new Doctor who hopefully will take some blood work and try a little bit harder to help.
    If anyone has any suggestions for how to treat this long-term please let me know. My friends and I always joke about getting older and how we all have aches and pains but mine all started with this virus. I just hope I can find a doctor who will take me seriously. Thank you for any advice.

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    1. Jessica Dailey

      I got Chik in August 2014 while sailing in Grenada. I think I probably got it in Bequia.

      I had similar pain in my hands, fingers, knees and feet. I was finally diagnosed with Psoratic Arthritis. I may have had very, very mild psorisis on my scalp prior to getting Chik. It seems the Chik brought out the worst symptoms of the arthritis. I could barely move, walk or type for two years. Now taking Humira and I am virtually cured. I will always have the arthritis now for the rest of my life unfortunately.

      Your Doc should give you blood tests to see if you have arthritis.

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      1. Tara

        Thank you Jessica. My current doctor did an x-ray on my hip and it did not show arthritis. 3 years ago a doctor in Singapore ran a test for arthritis and it was also negative. The best I can understand is that it’s not actual arthritis but arthralgia. I have read so many websites and I really just keep getting it all mixed up.
        The doctor in Singapore did run a test that verifies chikungunya. But so far I have yet to find a doctor who takes me seriously regarding the pain. I think I’m going to take Kim’s suggestion and look for a rheumatologist. I am also going to look into that medicine you said you are taking. I really like this site, it’s nice to hear from other people who are going through the same thing. Call of course I am sorry we have it at all.

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    2. Kim Calder

      Hi Tara

      I contracted chikungunya in Bali Jan 2015. I have struggled with relapses ever since. I have had terrible joint and muscle pain fatigue and during my recent relapse I became very depressed. I was also a very fit active person I am 47 years old and know all these symptoms are not just from getting older as I was very capable before I contracted the virus.

      About 3 months ago I saw a rheumatologist for the first time who has been marvelous and really helped me. I have been on anti malaria tablets for 3 months my vitamin d was also low – I think this is due to the ibs which I have from the virus. I now am feeling back to my old self, I am able to get back into exercise I still have small amounts of pain in my joints but nothing compared to what I had. The fatigue fog has lifted and I feel I have my old energy back. I hope this continues but I really feel I have turned a corner. The rheumatologist I have seen is really the first doctor I have seen in Perth who has knowledge of the virus.

      Tara I hope you find some relief soon from the virus it is a nasty virus and I have felt it can be all encompassing.

      Kim

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      1. Tara

        Thank you so much Kim. It means a lot to hear from someone else. I think most people find it hard to believe that pain for the virus can last this long and I worry that people think I am being dramatic. So it is good to hear from someone who understands. I am switching my insurance and when my new program starts in January I will look for rheumatologist. Thank you again for the advice and feel free to keep me posted.

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      2. kim calder

        Hi Tara, I know how you feel. I have felt people have not understood the extent of the pain and fatigue I suffered from the virus. Just when I would think I was feeling better it would recur. The last episode seemed to last for a long time and i got very depressed from the fatigue. Fingers crossed it does not return. I have been feeling much better for the past 6 to 8 weeks, which is the longest I have felt pain free since I was originally sick. It is nice to feel like I have my old energy back,

        I hope you are feeling better soon and please do not hesitate to contact me if you want to talk. I felt quite isolated in Australia as not many people has heard of the virus and I think that made it worse not to be able to discuss it with someone who understands how it feels.

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      3. Tara ï

        Thank you Kim. I hope you continue to feel better too. I do fine for the most part except when I exercise. I just joined a gym and have been going for the past 3 nights. So now my hip really hurts. Were you on vacation in Bali when you got the virus? It was such a crazy illness. I have only been in Jakarta for three weeks working at an International School. At least they’re the doctors knew what it was, feel free to keep in touch as well I am always happy to have someone to chat with about this.

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    3. Kim calder

      Just reading over your original post Tara and have to say I have the pain in my feet too when the fatigue is there.

      Unfortunately this week, after feeling like I was back to my old self again have obviously overdone it with the exercise as the gastro started up again then the fatigue and pains again.

      I also have the awful pain in my feet when I have a recurrence of symptoms. Sometimes it feel like the soles of my feet are burning but most of the time the bones just ache. Does anyone else get this. Am trying to ignore symptoms as am worried it will recur for months again like it did last time and I would really like to get through the Christmas festivities feeling my old energetic self.

      Hope everyone is feeling some relief at this busy time of year.

      Kim

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      1. Tara

        I am so sorry Kim. That is very frustrating. I’m in the same boat right now. I joined a gym and have been working out on a fairly regular basis, but still not up to my usual routine. If I work out for more than one or two days my hips starts flaring up again as do my feet. It just feels like this is never going to go away. Right now I just can’t wait to get home and get in a hot bath tub. I hope you feel better soon.

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      2. Kim calder

        Hi Tara

        Yes it is very frustrating sometimes I feel back to my old self then push things a little
        Too far and symptoms seem to come back. This last relapse I had in august – September I was forced to stop exercise all together for a few weeks due to the fatigue. I slowly started Pilates and yoga and began to feel better. Once I felt well enough I started doing some aerobic classes which felt great and helped lift the depressed feeling but then I have found 3/4 weeks of that and the symptoms all started again. Sometimes I think it’s on a cycle. I felt the cycle of symptom free was a big longer this time so I am hoping the virus or effect it has had on my body is weakening but who can tell it is such a crazy illness. I had tests for arthritis as well but they have come back negative and the pain was classed as arthralgia too. Obviously glad it is not arthritis but it is very painful all the same.

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  30. Nat

    Hi guys ,
    I contracted this virus 2 n a half months ago , my main issue is the fatigue ! I’m 27 years old and I feel 90 ! If I walk a long distance my legs feel shakey ..
    have very stiff joints in the morning along with some muscle weakness ! I would recommend taking light massages with warm mustard oil !
    Had any one experienced a lot of fatigue with this illness ?
    I also would recommend stretches n walks !
    Yes this infection does damage the spirit for sure , you feel handicapped !
    It’s hard to imagine how few of you have a positive attitude even after having this illness for years , n I feel defeated already just 3 months in !
    Can anyone please tell me how long will the feeling of fatigue last ? My stamina has gone to zero as I keep running out of breath if I walk a little more than usual ! Also sitting in one place for a long time makes the pain worse ! I heard in some cases chikungunia gives gastrointestinal issues , which has sure been part of my journey !
    It’s hard to stay positive sometimes but I guess that’s the only way around

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    1. Kim calder

      Hi

      Sorry I didn’t get your name and sorry to hear you have contracted chikingunya. I have suffered from terrible fatigue with the virus and very bad gastrointestinal problems from the virus. Unfortunately i still suffer from both of these symptoms almost 2 years after contracting the virus. I do have bouts of wellness for weeks at a time and then out of nowhere it seems to come back. It is not as severe as it was in the first few months but I can feel my energy has just been zapped. I think trying to get as much rest as you can is important. For the gastro problems I have gone lactose free. Now 2years on it is milder but I still have problems that were not there before I contracted the virus. I have also been taking anti malaria tablets for 3 months and this I am sure has slowly improved how I have felt. I think it has improved the the joint and muscle pain and headaches I have had ongoing for the past 2 years too. I hope you get better soon Hopefully the fact that you are quite young will make for better recovery. I was over 45 when I contracted the virus and I have read that the older you are the more chance of there being long term issues with the virus. Regards Kim

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      1. Ana Paula Arcoverde

        Olá, Kim!

        Perdão pela indelicadeza de escrever em português, mas sou brasileira e tenho imensa dificuldade com o inglês.
        Poderia me dizer se seu estilo de vida anterior à infecção pelo vírus era ativo? Vc praticava exercícios regularmente? E depois da infecção, vc iniciou ou retomou a prática?

        Espero se recupere definitivamente, o mais breve possível!
        Saudações, Ana Paula!

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  31. Ana Paula Arcoverde

    Olá! Bom dia!

    Perdão pela indelicadeza de escrever em português, mas sou brasileira e tenho imensa dificuldade com o inglês. Estou lendo seu blog com ajuda do Google tradutor. 🙂 Mas a tua história é tão importante para mim, que não poderia deixar passar essa oportunidade.
    Sou estudante de Educação Física na Universidade Federal de Pernambuco e pesquisadora júnior (que aqui chamamos de” Iniciação Científica”) em Fisiologia e Imunologia do Exercício. Atualmente, estou debruçada sob compreender a febre Chikungunya e sua relação com comportamento ativo ou não ativo, anterior, do paciente e suas repercussões sobre a severidade dos sintomas no paciente. O teu relato tem detalhes muito importantes! Como deve saber, no Brasil, estamos vivenciando uma epidemia de Chikungunya, que está debilitando e comprometendo funcionalmente muitas pessoas. Meu objetivo é estudar como o exercício físico influencia sobre os sintomas agudos e crônicos da doença – principalmente os sintomas sobre o sistema locomotor.
    Com quanto tempo voltou a praticar exercícios?
    Será que poderíamos trocar e-mails?

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  32. Nat

    Hi Kim,
    This is nat , Thanks for ur response Sorry to hear this has continued for two years , hope u feel better !
    Do u recommend starting walks etc to get my stamina back , I make sure I get 8 hours of sleep , but then if I rest the whole day I feel more lethargic , I feel if I get out of the house for few hours I feel better emotionally ! And I think that’s the only way I will be able to get my stamina back !

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    1. Kim calder

      Hi Nat

      I found the lethargy horrible. I suffered from it a lot over the past couple of years. Before I was sick I was a runner and cyclist. I was used to pushing my myself through long runs and then going for a cycle to work and be able to run a house of 5. Since I have been sick I don’t have that same ability to push myself. I was almost bed ridden for a few months to start with then after that it was months of border line between feeling like I should be in bed and struggling to get back to normal. I spent Time trying to push myself back to my old self and I have to say the fatigue just took over. I look back now and think the fatigue made me really depressed so I would recommend to really look after yourself. Sleep, rest fluids no stress and gentle exercise . I found I was very stiff and sore after being in one position for a long time but when I tried to get back into running I would have a relapse of symptoms after a few runs.

      Hope you feel better soon Nat , all I can say is look after yourself I have found it is an all encompassing illness in that it affected all parts of me – not just physically but mentally as well.

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  33. Nat

    Hi Kim , thanks for the reply !
    Ya your right I guess slow and steady and not over do it !
    Oh gosh the fatigue is so so depressing , I literally go out to for dinner with friends n feel so frustrated about how they all have this energy and I feel like it’s all been taken away from me ! I just pray every day that it will come back !
    Wow u seemed to be very athletic before u caught the disease ! Yes I guess for me too slight walks n few stretches should be good ! It’s so strange how the disease affects everyone a little differently , my friend also caught it at the same time , n he’s already 90 percent recovered in the gym !
    But I guess each ones body is different , so slow n steady
    Yes it does affect you mentally ,hope we all fight it and get over it in no time !
    Prayers forall of you strong woman out there with chikungunia! We shall all fight it !
    X

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    1. Kim calder

      Hi Nat

      From what I can remember the sub acute stage lasted for about 3 months. It was pretty tough, I went back to work and tried to continue as I would usually but I was still really unwell and was in a lot of constant pain. I remember sometimes thinking it had gone and start to feel better for a few hours and then it would all be back again. Mornings were tough as my body was so stiff when I woke up and I had a constant headache, I have also had lots of problems with one eye. It is very stiff
      And painful to open
      First thing in the morning and I have also had inflammation problems with that eye that have been treated with steroids. My gastro problem was terrible at this time. The virus affected all my muscles and the only way to describe it is it felt like my bowel muscles were cramping all the time and at the most inappropriate times it was awful.

      By the time it moved into the chronic stage for me I just wanted my old self back and wish there was an end date. I have spent lots of time this year trying to work out if the virus has triggered fibromyalgia, chronic fatigue, ibs etc. I got really depressed during a relapse as I was so fatigued and I think I expected by 18 months on to be over the virus. I felt misunderstood as I suppose most people around expected me to be over it and it is difficult for people to understand pain and fatigue they can not see. I had a lot of joint and bone pain with the latest relapse which I felt lasted on and off for about 8 weeks. I have just had the longest bout of time feeling well which was about 6 weeks, I began taking anti malaria tablets and vitamin d which was low and I am sure this has helped to improve my symptoms. I am also learning after all this time not to push myself when I am unwell. I was always used to pushing myself to extremes with exercise but now my body just does not have the resilience it had before I was sick and it just brings back symptoms if I over do it.

      It’s been a tough couple of years and I wish I could be more positive for you but it is a nasty virus.

      Nat hopefully as you are younger the virus does not drag on for you.

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  34. Tara

    Hi again. I can vouch for what Kim is saying regarding the paint and exercise, everytime I think I’m feeling better and I started to push myself it gets worse again. 0
    I have one other question for everybody- I have noticed that since the virus my tolerance to alcohol has gone way down. In some ways I am glad as I have no interest in heavy drinking at this point of my life but I now see that if I have more than one beer I wake up the next day with an awful hangover. It used to be that I could have about 3 before I felt the effects the next day. I really would like to be able to just go out and have a few drinks with friends and not have to worry about how I will feel the next day if I have more than one. I know this could also be a sign of growing older but I am just wondering if anyone has noticed similar reactions when it comes to alcohol and the virus.

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    1. Kimberly Taylor

      Yes!! The hangovers are awful. I get extreme bone pain in my collar bone & femurs. It’s the worst. One drink and I have pain. I’ve also had the GI complaints that have recently been talked about so I’ve restricted my diet heavily & with the weight loss that came with everything I’ve not been able to drink at all.

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      1. Kim calder

        Yes I agree the virus took away my tolerance to alcohol as well. A few drinks on a Friday after a busy week and I would be in pain all weekend. I feel that part has lifted a bit but I am not pushing myself as much and I am careful what I drink and eat and how much sleep I get.

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  35. Nat

    Hi ! Yes that is true ! I guess the days we feel too unwell we shouldn’t push ourselves and allow ourselves rest that day , it is indeed imp to listen to the signs our body is giving us !
    Also regarding the alcohol make sure u drink a glass of water after each drink and even a lot of water before going to bed so you can flush of the alcohol ! Or eat a slice of bread before bed !
    Praying for all of you !
    X

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  36. Lisa

    Anyone besides me who experience muscle twitches in the legs along with a sensation of “pins and needles” in my legs? I’ve had the virus for about a year now and I am so tired of it in every single way. Have gotten better but still have pain and the muscle twitches in my legs. Had that for abput 6 moinths now (started after 6 months).

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    1. Kim calder

      Hi Lisa

      Yes I have had similar problems but mine was more cramping that I never had before. The cramping was in my lower legs and arms. When I was first sick these muscles were so painful I felt they had been torn. After 2 years the cramping has only recently improved and when I have a relapse they are quite severe.

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  37. Nat

    Yes Lisa pins and needles is common in chikungunia, because I read somewhere it affects the blood circulation , experience a lot of this while sleeping at night , acupuncture might work

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      1. Kim calder

        Hi Lisa

        I had lots of muscle spasms and really bad cramps in my lower legs and forearms. This has improved now but when I have a relapse they return.

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  38. Rosy

    Querida Ana paula,
    Peguei chikungunya a dois anos e sinto muita dor nas articulações. Sou de Grace Bay, Turcas e Caicos, mas estou a viver em Brasil desde que tinha 11 anos. Contrai a doença numa viagem a Fortaleza – CE, e começou com dores articulares e a febre alta, cinco dias depois que voltei da viagem. As dores articulares eram tão fortes que não podia escrever. Andar era difícil. Fiquei andando curvada, como uma mulher velha, por conta das dores, e fiquei cinco meses na crise, mas, curiosamente, não tive o rash cutâneo característico dessa febre. Tive diagnóstico errado de Artrite Reumatoide, e, inclusive, fiz tratamento para isso, sem melhora. Retornei à médica, que eventualmente me mandou fazer exames para chikungunya, dando positivo para o/a mesmo/a. Na fase crônica, manifestei sintomas psicológicos, e, inclusive, fui diagnosticada com TAG (Transtorno de Ansiedade Generalizada), e tinha pensamentos suicidas – não acredito que tenha sido apenas por causa da doença, visto que passei por eventos traumáticos no mesmo período -, e atualmente estou a fazer acompanhamento psicológico. Me viciei em medicamentos para dor, e estou lutando para largá-los. Não era ativa antes da doença, mas, agora, estou a fazer dança de salão e hidroginástica. Na fase subaguda, fiz hidroterapia, com melhora significativa, mas eventualmente abandonei a hidroterapia, optando por fazer apenas hidroginástica e dança de salão, além de uma caminhada ocasional na praia, sem contar banhos de mar. Voltaria à Fortaleza, se possível, mas usaria repelente de mosquito. Atualmente estou de volta em Turcas e Caicos, mas vivo no Brasil. Espero que lhe seja útil essa informação.
    Grata,
    R

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  39. Nat

    Lisa I get twitching in my eye and lip , like a quivering feeling , specially when I am very tired !
    I also have a low grade fever of 99 ( my usual temp is 97 Fahrenheit)
    Does any one else have the low grade fever ? Specially during the nights
    Also wanted to ask if anyone knows the answer-
    If you are on ur recovery stage of chikungunia and if a chikungunia mosquito bites u again , will it again turn up ?

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    1. Kim calder

      Yes I have had lots of eye problems too. Only in one eye – it is very painful to open In the morning. I am sure it is a muscular related problem. I have also had an inflammatory infection in my eye which requires steroids.

      When I have a relapse I feel slightly feverish for a few weeks.

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      1. Lisa

        Thanks alot for all the replies!!
        Alot of you are talking about relapses, do most of you feel fine when you dont have a relapse?

        I still havent had more than maybe 3-4 kind of pain free days and its been about a year for me now. Also, forgot to mention that, the pain that never goes away for me (at least not yet) is the twitches in my legs/calves, pins and needles along with a kind of sensatory feeling in my calves, one example is that its hard for me to wear pants because they are “itching”, really strange I know.
        Have NEVER had any problems with this prior to the virus. Have also passed several neuro-tests that I did over the last months.
        My doctors dont know shit about this virus besides the “classic joint problems”.

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      2. Kim calder

        Hi Lisa

        It’s been 2 years now and the time between relapses is lengthening and this last relapse of symptoms I have had is milder. Apart from the pain I noticed in my last two relapses when it started coming back my leg muscles were really itchy and my skin feels awful. I also notice my body feels weighted like there is a slight crushing sensation all over in my bones. I can also feel this in my teeth and jaw. It is a bizarre virus.

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  40. Nat

    Thanks for the reply Kim .. n Lisa -My good days will be when the pain is of lesser intensity and when I don’t feel too fatigued , my bad days will be when everything pains ,combined with the gastrointestinal feeling( slight nausea) and fatigue .. but I’ve not been completely pain free , there is something or the other each day
    So the days I feel good I feel oh wow I’m getting better but then the next day I might have bad day again , so I don’t know if it is a relapse or just the way this disease functions ..
    sometimes I won’t have joint pains but the muscles on the thigh feel as if I’ve done a heavy work out or climbed a million stairs ( like a weak feeling )!
    Chikungunia gives so many small small symptoms n side effects , sometimes I question whether I have some other health issues n whether one mosquito can do this , but reading about it online confirms it’s all symptoms of chikungunia!

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    1. Tara

      Yes. I would also say that there has not been a day where I am pain free. Some days the pain can be mild, a slight ache in my hip and a few pains in the joints in my fingers. My feet always hurt to some degree. It gets worse whenever I exercise and by exercise I mean either taking a two or three mile walk on the street or a more intense uphill version on a treadmill. In particular, if I do the treadmill everything will really hurt that later that day and the next day.
      I also have what Kim described as far as the muscle pain around my thigh and also my hip and yes I’ve often described it as well as feeling as if as if I’ve just done a huge hike or workout when actually I haven’t done anything.

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      1. Kim calder

        Hi Tara

        Yes I too always have some pain in my body which comes and goes throughout the day. I feel it is not as bad as before so I am hoping it is losing its strength over time. The fatigue and headache are always more intense when I have a relapse and the smallest exercise can make my muscles feel like they have done a marathon. I hope everyone starts to feel some relief soon. I felt so frustrated not really knowing when the virus will end and really just wanting my old self back pre virus. I think I have coped with this latest relapse better by starting to accept that I need to take it easy and not push myself.

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  41. Nat

    Kim what’s the longest you have gone without pain ,until the relapse ..
    I remember After one month of having chikungunia my pain almost went away ,n I was only dealing with the gastrointestinal issues , then I had to travel somewhere where the climate was very hot n humid n after that I got the itchiness of the rash back along with pain in every part of the body , which is now taking a while to go ..
    anyone knows what kind of climate suits better for chikungunia?

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    1. Kim calder

      Hi Nat

      I felt like I would relapse roughly every 4 to 6 weeks and I felt it was almost cyclical. The last pain free time was prob only 2 to 3 weeks of completely no pain but I felt better for almost 8 weeks before I started to feel symptoms flare up. During this time my gastro
      Problems cleared up, the fatigue lifted, I felt more energetic and the joint bone and muscle pain slowly subsided. The flare ups seem to start with the gastrointestinal upsets then I feel a dull headache in the morning when I wake and my body is fatigued and the various aches and pains return. This last flare up does not seem to be as bad so I am hoping either the anti malaria medication is helping or fingers crossed the virus is losing its strength.

      Nat I wish I could be more positive for you but for me the virus has been upsetting and changed the way I like to live. I loved pushing and challenging myself in exercise. I am naturally a busy person who likes doing lots and not being able to do all the things I loved due to the fatigue made me feel depressed . Now I think I am finally accepting my body can’t cope with being pushed anymore. Since I have begun to accept this I feel better mentally.

      Fingers crossed as you are younger I hope you have a quicker recovery.

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      1. Kim calder

        Nat

        I also thought I would let you know the gastro problems became really bad for me at about the 12 month stage. I had lots of urgent trouble. It was awful and I got quite upset. I felt the muscles of my gut were in spasms. I went on to lactose free and fodmap diet which helped. I was prescribed ended which is an old antidepressant but it is used to dry up the bowel for gut issues. For personal reasons I decided to not have the ended but tried a formal diet and went as lactose free as I could. I think this was a phase of the virus. My gut still causes me issue but it is so much better than it was. Sorry if I shared a bit much guys but I wanted to let you know Nat maybe some helpful remedies.

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  42. Nat

    Hi Kim , ya I’m sure the virus must be leaving your body , stay positive !
    Yes same for me the bad days are when the gastrointestinal issues occur along with the pain , I guess everyday symptom treatment will help , also I wanted to ask for some advise – do the pain killers trigger the gastrointestinal issues or no ? Was seeing if I should avoid them on days where the pain is less

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  43. Nat

    Also when I ask doctors about the fatigue and weakness they tell me it is post viral asthenia ( post viral fatigue ) what have your doctors said about it?

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    1. Kim

      Hi Nat

      Yes a few doctors have called it post viral fatigue. with some relapses it has not been so bad but other times I remember the fatigue hanging round like a thick fog for weeks at a time. I also woke up with a dull headache which continued all day.

      I don’t think pain medication made the gastro symptoms worse I found it hard most of the time to work out what triggered a bout then I didn’t feel anti inflammatories I was prescribed really eased the pain so most of the time I just took paracetamol which only worked sometimes.

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      1. Kim

        My understanding was me/CFs and post viral fatigue were all the same just different names. I have been scared a few times that the fatigue is chronic fatigue and it is going to get worse but to this point it has ended with each relapse and I have had some energy come back.

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  44. Nat

    The symptoms of cfs and chikungunia are so similar – muscle pain , joint pain , insomnia etc so I guess there is fear that we have that , but as Kim said the fatigue comes when there is a relapse , for me to the fatigue is there more when there is pain , so I guess until the virus is there in the body there will be little fatigue and when the virus is eliminated I’m sure our bodies will feel better and less fatigued and soon be back to normal !
    I don’t know how right I am but correct me if you think I’m wrong

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  45. Nat

    Also discussed with My doc said CFC randomly appears out of nowhere , but here we are fatigued cause there’s a cause in this case the chikungunia virus

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    1. Kim calder

      I was also diagnosed with post viral irritable bowel syndrome. To me I Think the post viral ibs and post viral fatigue are all part of the virus.

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    1. Rosita

      Yah, I’m able to travel, and I’m even traveling now. And I’m able to have an almost normal life, and I say this ’cause sometimes I have painful relapses of disease even thought it has passed 2 yrs since I got virus. But, all in all, I’m fine, thxs. Yuh’re gonna be fine too, believe me. It takes some time, but yuh’ll be fine, apart from some occasional relapses (I hope I’m just kidding in yuh case, but I really have relapses and I can’t hide this possibility from yuh), but yuh can still have normal life.
      Hope it helps,
      R

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  46. Janice

    Hi everybody ,
    This is Janice ! I need your help !
    Chikungunia has had me since 3 months now , some days I feel better than other days , some days I feel weaker specialy during the periods , and some days have body ache , does anyone feel slightly dizzy while shutting there eyes at night?
    I heard chikungunia affects the muscles joints and skin.. how long will I have to go through this ? How many bottles of water should I drink to be properly hyderated ?

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    1. Rosita

      I have chikungunya for past 2 yrs and nah, I don’t feel that dizziness yuh mentioned, but I don’t doubt it’s a symptom of the virus. And about ideal amount of drinking, well, IDK if that exists, ’cause I used to drink lots of water and the symptoms were still there. And the author of this blog did write that she used to drink lots of water but symptoms didn’t disappear, and se believe, as me, that hydration don’t seems to have much effect while treating this disease…
      hope it helps,
      R

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